Friday briefing: How disabled creators are challenging an ableist world
Good morning. Among a display of slogan T-shirts in the V&A Dundee’s Design and Disability exhibition, the first that meets your eye reads “Access is love”. Then, lest you presume you’re in for an easy ride, the next one declares “Piss on pity”. That one’s a reference to the 1990 Block Telethon campaign, a pivotal moment when hundreds of disability activists gathered outside ITV studios in London during a live fundraising broadcast and noisily protested their portrayal as tragic victims and plucky heroes deserving of a charitable pat on the head from the public. Decades later, it is still not easy to be a disabled person in an ableist world where accessibility so often remains an afterthought. For today’s First Edition, I spoke to Frances Ryan, Guardian columnist and author of Who wants normal? Life Lessons from Disabled Women about access, adaptation and radical acts. Before that, this morning’s headlines. Five big stories UK politics | Regional mayors are to be given a leading role in the UK’s economic policy, Andy Burnham has said, as he called the opening of No 10 North “the biggest rebalancing of power our country has seen”. Trump tariffs | Donald Trump’s administration has imposed a fresh wave of sweeping tariffs on dozens of US trading partners to replace a 10% global duty that was set to expire early Friday morning, which includes the UK. UK news | The Southport killer Axel Rudakubana has been moved from prison to a psychiatric hospital after clinical assessment, the Guardian can disclose. Middle East | The US president has said he is close to deciding whether to launch “a massive attack” against Iran, on a scale larger than strikes already witnessed during the months-long conflict with Tehran. Environment | Parts of Wales are now in drought and all other areas of the country are experiencing prolonged dry conditions. In Europe, brutal heat has forced nearly 20,000 people to flee wildfires in France and a marine heatwave scalds the Mediterranean. In depth: ‘Good design can reach far beyond its initial purpose’
Upending the assumption that disabled people are a problem to be solved, Design and Disability, which I visited last month, is a celebration of DIY design and grassroots organising. Initially exhibited in London, the show celebrates the radical contributions of disabled, deaf, and neurodivergent people to contemporary design and culture, and has been re-imagined for the V&A Dundee, with new pieces from Scottish designers like Jamie O’Donnell, who makes airline seats for neurodivergent and low vision travellers. This footprint extends well beyond care settings and adaptive housing, like a harness that allows hearing-impaired gig-goers to feel music as vibrations on their chest, a self-tightening shoe and the ubiquitous fidget spinners, which have become a popular stress reduction – or stimming – object for neurodivergent people. There are adaptive bras and bikini briefs designed by Slick Chicks, who make underwear for people with limited mobility, and recently teamed up with a dating platform to discuss sex and relationships. It is a raucous testament to the big and small innovations that challenge daily exclusions, and shows how good design can reach far beyond its initial purpose. But adaptation doesn’t always mean progress. Tactile paving slabs, inspired by braille, were developed in the 60s to allow those with low vision to feel for the edge of train platforms and pavements. Nowadays they are regularly misused as decorative touches in urban design, confusing people who use them as navigational aids. “As someone born with a disability that means I use a wheelchair, I soon realised it was completely normal for me to be blocked off from every day parts of life, from the changing room in a clothes shop, a bar for a friend’s birthday, to the tube to get to the Guardian offices,” Frances told me when we spoke after my V&A visit. “But that isn’t ‘normal’, of course. It’s a choice society makes and can address if there is the political will.” But what’s also apparent is the snail’s pace of change. One item exhibited, the McGonagle Reader – an audio-assisted tactile voting device to help blind people vote independently – was only released in some parts of the UK for the 2024 general election. *** Design at the vanguard As I wandered through the exhibition, I was struck by how a non-disabled person like me can miss the inherent usefulness of an object. We’ve reported recently on profound privacy concerns around smartglasses: but many readers got in touch to remind us that smart technologies can be gamechanging for those with sight or hearing loss. One of them, Colin Hughes, a former BBC producer who lives with progressive muscular dystrophy and has worked with tech companies to improve their accessibility, told me: “Smart glasses are transformative for people like me who are paralysed … I can’t pick up my phone but by saying ‘take a photo’ I can share a picture with my family. You can’t put a price on that kind of independence”. Hughes also made the point that many disabled people are priced out of tech: “It costs thousands of pounds to make your home truly smart”. It’s something that Frances told me too: “It recently cost me £20k to build an accessible bathroom and I was just quoted £1.8k for a smart curtain rod.” These sums are out of reach to many: in research published earlier this month by the Disability Poverty Campaign Group, nearly three-quarters of respondents said their income does not consistently cover the cost of the food they need to stay healthy. “I’m lucky I have a job to fill in the extra costs – and the developments in tech are incredible – but it’s striking how much cash disabled people have to find just to live like everyone else. Non-disabled people spend their spare income on a holiday. We spend it on being able to open our curtains.” *** Protest works Alongside Block Telethon, the exhibition documents other historic protests and activism, like the 80s and 90s Campaign for Accessible Transport during which wheelchair users chained themselves to buses. Contemporary examples are also present, with images of disabled people protesting outside Westminster last summer, when campaigners risked their health in the searing heat to force Starmer’s U-turn on proposed cuts to disability benefits. Personal independence payments (Pip) are made to people aged 16 to 66 to assist with the extra costs they face through ill health or disability. One of Starmer’s proposals to fix the “broken” benefits system by tightening eligibility criteria was met with a fierce backlash from campaigners and MPs. Disability minister Stephen Timms has been tasked with reforming the whole system – Burnham kept him in post when he appointed his new cabinet this week – and there is a rare opportunity, according to Frances, to lobby for “an ambitious new safety net for 2026 and beyond”. She outlined how a progressive alternative to Pip, which was brought in by the coalition government in 2013, could radically rethink the current system of point-based assessments which don’t account for individual experience or fluctuating conditions. These tick box tests are given far more weight in assessments than evidence from a disabled person’s actual medical team and have also resulted in humiliating questioning: she was asked “How do you put your bra on?” last time around. Frances also wants to see the return of indefinite awards for people with permanent conditions, which were phased out in 2013. “Research by the anti-poverty charity Z2K shows there were more than half a million pointless reassessments last year of people with conditions such as cerebral palsy, learning disabilities and amputations – presumably to check someone’s leg hadn’t grown back”. *** Radical acts At the opening of Design and Disability in Dundee, curator Natalie Kane told the colourful crowd that the exhibition was “an act of joy and resistance.” These words resonate against the current backdrop of deliberately fostered hostility towards minority groups – which Frances highlighted back in April when she reported on how blue badge users are being harassed, questioned and even assaulted as anti-benefits rhetoric becomes more mainstream in the UK. Kane said the daily reality of disabled living demanded “one radical act at a time”, a sentiment Frances echoed. “I never underestimate the power of every day protest. Wear your favourite summer dress with your scars visible. Kiss your boyfriend when the waiter asks if your ‘carer’ wants the bill. Speak incredibly loudly to the hotel receptionist when she directs her questions to the non-disabled person behind you. In a world that still too often says disability is miserable and shameful, living a life of freedom and joy is a radical act.” What else we’ve been enjoying
Our appetite for tribute acts is insatiable, and Daniel Dylan Wray investigated why. I can highly recommend the scouse Dolly Parton who played at my friend’s wedding. Michael I’d read a shopping list if our US culture writer Alaina Demopoulos had written in. In this typically smart feature, she examines how the right has weaponised women’s menstrual phases. Libby I’ve already spent 15 minutes and counting exploring this interactive story which ranks the world’s most powerful passports. Michael I nearly filed my newsletter late because I couldn’t stop watching this incredible footage of young orcas playing with a giant sunfish. Sad times for the sunfish of course, as the point of the game is to explode it into smithereens. Libby Since my own reporting trip to the Antarctic, I’ve been obsessed by Ernest Shackleton’s legendary expedition to the continent. These freshly digitised images of his early 20th-century adventure are remarkable. Michael Sport
Commonwealth Games | The surreal sight of King Charles and Queen Camilla stepping out of a Tardis – and a mechanical Loch Ness monster roaring the first few bars of Flower of Scotland – marked the opening of the Games in Glasgow. Cycling | Richard Carapaz won stage 18 of the Tour de France, but uncertainty surrounds the health of race leader Tadej Pogacar’s UAE Team Emirates XRG, which has been swept by a virus since Monday’s rest day. Cricket | The Middlesex chief executive, Andrew Cornish, has been dismissed after misconduct charges against him were upheld by an independent disciplinary panel. Something for the weekend Our critics’ roundup of the best things to watch, read, play and listen to right now
TV A Toxic Love Story | ★★★★☆ The sound of barrel-scraping during true-crime documentaries is becoming more and more frequent at Netflix these days. A Toxic Love Story is a welcome, if doubtless temporary, return to form. It is a rigorous, 88-minute recounting of an astonishing story that became notorious about 10 years ago in the US and was known as “the Anaheim Craigslist case” or “the Anaheim Craigslist rape fantasy case”. “To put it lightly,” says one of the investigators, “this is a monster of a case.” The question of quite how many monsters it involves is one that keeps you watching, goggle-eyed and barely breathing, until the end. Lucy Mangan Music Charli xcx: Music, Fashion, Film | ★★★★★ Music, Fashion, Film is another gorgeously astute and disarmingly deep album about the instability of identity – not just as a vanguard songwriter striving for evolution, but how much we can ever know one another, or even ourselves. There’s no moralising side-eye: it is as acute as Brat in Charli’s scrupulous lens on how self-commodification is just the way we live now, how it might offer an escape from dire times, or helpfully beckon the hellfires faster. Does she contradict herself? Absolutely. Does that unsparing compulsion to lay it all out for us – the ego and self-hate; the defensiveness and chagrin – make Charli our most consistently bracing pop star? God, yes. Laura Snapes Film Nostalgia | ★★★★★ Andrei Tarkovsky’s 1983 film is a mysterious, imagist cine-poem about alienation and belonging, whose title means a yearning not simply for a lost time or lost place but for something, anything, else – with a profound anguished sense that the here-and-now of existence is unsatisfactory. A distinguished Russian scholar, Andrei, is in Italy to research the life of the (fictional) Russian composer Pavel Sosnovsky who is supposed to have travelled there before being overwhelmed by homesick longing. On arriving in the Tuscan spa town of Bagno Vignoni, Andrei appears to be overcome by a kind of breakdown or emotional paralysis. It is an unimprovably stark, sad film. Peter Bradshaw Theatre Sweeney Todd | ★★★★☆ (at Birmingham Rep) The story of a serial killer who provides the grisly contents for his landlady’s pies is ripe with the kind of dark gothic humour that appealed to the Brothers Grimm. Director Joe Murphy gives Sweeney Todd the full operatic treatment. His superb staging is as rich in detail as it is austere in execution. This is a London rendered in grimy monochrome, where the period costumes in pastel shades of mustard, lime and peach stand out in defiance of the poverty around them. Seriousness of purpose, however, does not make it heavy going. Yes, an excellent Ramin Karimloo never cracks a smile in the title role, but that only gives the blade-wielding barber a nobility that belies his actions. His chilling surface calm suggests all his efforts are going into suppressing a murderous rage. Mark Fisher The front pages
“Burnham: No 10 North is Britain’s biggest ever rebalancing of power”, is the Guardian’s front page today. The Telegraph leads with “Burnham orders halt to early release”, the Times says “Burnham eager to get drilling in North Sea”, and Metro, on Burnham cutting rates for pubs, has “Ahead on pints”. The FT writes “Oil hits $100 as Trump weighs ‘massive’ strike on Iran targets”, the i Paper has “State pensioners with no other income will be exempt from tax”, and the Mail says “Every single advanced AI model ‘goes rogue’ in testing”. The Express runs with “New cells will end the early release scandal”, and the Mirror splashes “Tragedy on beach trip”. The Latest
Gary Lineker calls for Burnham to introduce wealth tax for millionaires Millionaires including former footballer Gary Lineker are asking Andy Burnham to tax their wealth more. More than 100 wealthy Britons have signed an open letter to the prime minister, saying: ‘We want you to tax us. We can afford it.’ So should the government introduce a wealth tax? And why is the idea getting more popular? Nosheen Iqbal speaks to columnist and senior economics commentator Aditya Chakrabortty. Cartoon of the day | Ben Jennings
The Upside A bit of good news to remind you that the world’s not all bad
Sustainable forestry in Guatemala’s Maya Biosphere Reserve shows how community‑run concessions can halt deforestation. In the multiple‑use zone, cooperatives harvest only a few carefully selected trees per hectare under strict rules, keeping forest loss near zero. Communities such as Carmelita and Uaxactún earn income from value‑added timber, carpentry, tourism and non‑timber products, boosting local jobs and services. Others, like La Pasadita, focus on restoration, growing more than 120,000 seedlings to regreen degraded pasture and reduce wildfire risk. Forest cover in several concessions is increasing, proving that livelihoods tied to sustainable use can protect biodiversity while raising incomes. The model is now shaping national policy. It goes to show, says José Román Carrera, a forestry director at the Rainforest Alliance that “the forest is best protected by those whose livelihoods depend on it”. Sign up here for a weekly roundup of The Upside, sent to you every Sunday Bored at work? And finally, the Guardian’s puzzles are here to keep you entertained throughout the day. Until tomorrow. Quick crossword Cryptic crossword Wordiply